Wie gelingt die Einbindung von Betroffenen- und Angehörigenvertreter:innen in die Entwicklung von evidenz- und konsensbasierten Behandlungsleitlinien? Ergebnisse einer Umfrage im Fachbereich Psychiatrie
Research output: Contribution to journal › Research article › Contributed › peer-review
Contributors
Abstract
OBJECTIVE: The study examines how successful the participation of people with mental illness and family members is currently in the development of psychiatric guidelines.
METHODS: Survey results of N=561 (Response 37%) guideline developers are analyzed.
RESULTS: Involvement of affected individuals succeeds more often than that of family members (61% vs. 55%). 68% felt that this participation was central to successful guideline development. 51% perceived discrepancies between empirical evidence and experience perspective. 33-36% perceived a lack of appreciation of experience expertise, 37% an insufficient representation and 46% an inequality in consensus building. 45% did not see barriers effectively removed.
CONCLUSION: There remain challenges in the participation of people with mental illness and family members. There is an increasing awareness that their participation is central.
| Translated title of the contribution | How Successful is the Participation of People with Mental Illness and Family Members in the Development of Evidence- and Consensus-Based Clinical Practice Guidelines? Results of a Survey in Psychiatry |
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Details
| Original language | German |
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| Journal | Psychiatrische Praxis |
| Publication status | E-pub ahead of print - 22 Dec 2023 |
| Peer-reviewed | Yes |
External IDs
| unpaywall | 10.1055/a-2201-7987 |
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| ORCID | /0000-0002-3415-5583/work/150329743 |
| Scopus | 85180932096 |