Wie gelingt die Einbindung von Betroffenen- und Angehörigenvertreter:innen in die Entwicklung von evidenz- und konsensbasierten Behandlungsleitlinien? Ergebnisse einer Umfrage im Fachbereich Psychiatrie

Research output: Contribution to journalResearch articleContributedpeer-review



OBJECTIVE: The study examines how successful the participation of people with mental illness and family members is currently in the development of psychiatric guidelines.

METHODS: Survey results of N=561 (Response 37%) guideline developers are analyzed.

RESULTS: Involvement of affected individuals succeeds more often than that of family members (61% vs. 55%). 68% felt that this participation was central to successful guideline development. 51% perceived discrepancies between empirical evidence and experience perspective. 33-36% perceived a lack of appreciation of experience expertise, 37% an insufficient representation and 46% an inequality in consensus building. 45% did not see barriers effectively removed.

CONCLUSION: There remain challenges in the participation of people with mental illness and family members. There is an increasing awareness that their participation is central.

Translated title of the contribution
How Successful is the Participation of People with Mental Illness and Family Members in the Development of Evidence- and Consensus-Based Clinical Practice Guidelines?
Results of a Survey in Psychiatry


Original languageGerman
JournalPsychiatrische Praxis
Publication statusE-pub ahead of print - 22 Dec 2023

External IDs

unpaywall 10.1055/a-2201-7987
ORCID /0000-0002-3415-5583/work/150329743
Scopus 85180932096


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