Wie gelingt die Einbindung von Betroffenen- und Angehörigenvertreter:innen in die Entwicklung von evidenz- und konsensbasierten Behandlungsleitlinien? Ergebnisse einer Umfrage im Fachbereich Psychiatrie
Publikation: Beitrag in Fachzeitschrift › Forschungsartikel › Beigetragen › Begutachtung
Beitragende
Abstract
OBJECTIVE: The study examines how successful the participation of people with mental illness and family members is currently in the development of psychiatric guidelines.
METHODS: Survey results of N=561 (Response 37%) guideline developers are analyzed.
RESULTS: Involvement of affected individuals succeeds more often than that of family members (61% vs. 55%). 68% felt that this participation was central to successful guideline development. 51% perceived discrepancies between empirical evidence and experience perspective. 33-36% perceived a lack of appreciation of experience expertise, 37% an insufficient representation and 46% an inequality in consensus building. 45% did not see barriers effectively removed.
CONCLUSION: There remain challenges in the participation of people with mental illness and family members. There is an increasing awareness that their participation is central.
Details
| Originalsprache | Deutsch |
|---|---|
| Seiten (von - bis) | 195-201 |
| Seitenumfang | 7 |
| Fachzeitschrift | Psychiatrische Praxis |
| Jahrgang | 51 |
| Ausgabenummer | 4 |
| Frühes Online-Datum | 22 Dez. 2023 |
| Publikationsstatus | Veröffentlicht - 8 Mai 2024 |
| Peer-Review-Status | Ja |
Externe IDs
| unpaywall | 10.1055/a-2201-7987 |
|---|---|
| ORCID | /0000-0002-3415-5583/work/150329743 |
| Scopus | 85180932096 |
Schlagworte
Ziele für nachhaltige Entwicklung
Schlagwörter
- Consensus, Evidence-Based Medicine/standards, Germany, Humans, Mental Disorders/therapy, Patient Participation, Practice Guidelines as Topic, Psychiatry/standards, Surveys and Questionnaires