Datennutzung für eine bessere Gesundheitsversorgung–Plädoyer für eine kooperative Forschungsdatenplattform der gesetzlichen und privaten Krankenversicherung und dem Netzwerk Universitätsmedizin (NUM)

Research output: Contribution to journalResearch articleContributedpeer-review

Contributors

  • Jochen Schmitt - , Center for Evidence-Based Healthcare (Author)
  • Peter Ihle - , University of Cologne (Author)
  • Olaf Schoffer - , Center for Evidence-Based Healthcare (Author)
  • Jens-Peter Reese - , University of Würzburg (Author)
  • Steffen Ortmann - , Carl Thiem Clinics Cottbus (Author)
  • Enno Swart - , Otto von Guericke University Magdeburg (Author)
  • Sabine Hanß - , University Medical Center Göttingen (Author)
  • Falk Hoffmann - , University of Oldenburg (Author)
  • Christoph Stallmann - , Otto von Guericke University Magdeburg (Author)
  • Monika Kraus - , Helmholtz Zentrum München - German Research Center for Environmental Health (Author)
  • Sebastian Claudius Semler - , Technology and Methods Platform for Networked Medical Research eV (Author)
  • Ralf Heyder - , Charité – Universitätsmedizin Berlin (Author)
  • Jörg Janne Vehreschild - , Uniklinik Köln (Author)
  • Peter Heuschmann - , University of Würzburg (Author)
  • Dagmar Krefting - , University Medical Center Göttingen (Author)
  • Martin Sedlmayr - , Institute for Medical Informatics and Biometry (Author)
  • Wolfgang Hoffmann - , University of Greifswald (Author)

Abstract

With the Network of University Medicine (NUM) and the Medical Informatics Initiative (MII), the BMBF is funding two pioneering, structure-building research measures that are now being merged. The data integration centers (DIZ) of the MII are to be consolidated in the NUM. The aim is to establish a standardized research infrastructure within which the existing data from the clinical routine care of the 36 German university hospitals, from clinical cohorts and clinical-epidemiological studies can be used for various research questions upon request and via coordinated processes. The legal basis for this was the MII's "Informed Broad Consent", which had been agreed upon with ethics committees and data protection authorities and implemented in all NUM locations, with a so-called "health insurance module" that allows the collection and linking of routine medical data from statutory health insurance funds (GKV) and private health insurers (PKV) as a category of care-related data (VeDa). Linking this routine data with data from hospital information systems offers particularly high potential, as no single data source provides a complete picture of medical care and the two data sources complement each other optimally. The aim now is to integrate this routine data into the NUM's secure, transparent and participatory research infrastructure in a strategic partnership with statutory health insurance funds and private health insurance companies. This promotes Germany in its role as a research location and makes a decisive contribution to improving the quality and safety of healthcare in Germany in an evidence-based manner.

Translated title of the contribution
Access to and use of Data for better Healthcare
A Plea for a cooperative data and Research Infrastructure of Statutory and Private Health Insurers and the Network University Medicine (NUM)

Details

Original languageGerman
JournalGesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany))
Publication statusE-pub ahead of print - 10 Oct 2024
Peer-reviewedYes

External IDs

ORCID /0000-0001-6922-7148/work/173055564
ORCID /0000-0002-9888-8460/work/173055664
unpaywall 10.1055/a-2438-0670

Keywords