Datennutzung für eine bessere Gesundheitsversorgung–Plädoyer für eine kooperative Forschungsdatenplattform der gesetzlichen und privaten Krankenversicherung und dem Netzwerk Universitätsmedizin (NUM)

Publikation: Beitrag in FachzeitschriftForschungsartikelBeigetragenBegutachtung

Beitragende

  • Jochen Schmitt - , Zentrum für evidenzbasierte Gesundheitsversorgung (Autor:in)
  • Peter Ihle - , Universität zu Köln (Autor:in)
  • Olaf Schoffer - , Zentrum für evidenzbasierte Gesundheitsversorgung (Autor:in)
  • Jens-Peter Reese - , Julius-Maximilians-Universität Würzburg (Autor:in)
  • Steffen Ortmann - , Carl-Thiem-Klinikum Cottbus (Autor:in)
  • Enno Swart - , Otto-von-Guericke-Universität Magdeburg (Autor:in)
  • Sabine Hanß - , Universitätsmedizin Göttingen (Autor:in)
  • Falk Hoffmann - , Carl von Ossietzky Universität Oldenburg (Autor:in)
  • Christoph Stallmann - , Otto-von-Guericke-Universität Magdeburg (Autor:in)
  • Monika Kraus - , Helmholtz Zentrum München - Deutsches Forschungszentrum für Gesundheit und Umwelt (Autor:in)
  • Sebastian Claudius Semler - , Technologie- und Methodenplattform für die vernetzte medizinische Forschung e. V. (TMF) (Autor:in)
  • Ralf Heyder - , Charité – Universitätsmedizin Berlin (Autor:in)
  • Jörg Janne Vehreschild - , Universitätsklinikum Köln (Autor:in)
  • Peter Heuschmann - , Julius-Maximilians-Universität Würzburg (Autor:in)
  • Dagmar Krefting - , Universitätsmedizin Göttingen (Autor:in)
  • Martin Sedlmayr - , Institut für Medizinische Informatik und Biometrie (Autor:in)
  • Wolfgang Hoffmann - , Ernst-Moritz-Arndt-Universität Greifswald (Autor:in)

Abstract

With the Network of University Medicine (NUM) and the Medical Informatics Initiative (MII), the BMBF is funding two pioneering, structure-building research measures that are now being merged. The data integration centers (DIZ) of the MII are to be consolidated in the NUM. The aim is to establish a standardized research infrastructure within which the existing data from the clinical routine care of the 36 German university hospitals, from clinical cohorts and clinical-epidemiological studies can be used for various research questions upon request and via coordinated processes. The legal basis for this was the MII's "Informed Broad Consent", which had been agreed upon with ethics committees and data protection authorities and implemented in all NUM locations, with a so-called "health insurance module" that allows the collection and linking of routine medical data from statutory health insurance funds (GKV) and private health insurers (PKV) as a category of care-related data (VeDa). Linking this routine data with data from hospital information systems offers particularly high potential, as no single data source provides a complete picture of medical care and the two data sources complement each other optimally. The aim now is to integrate this routine data into the NUM's secure, transparent and participatory research infrastructure in a strategic partnership with statutory health insurance funds and private health insurance companies. This promotes Germany in its role as a research location and makes a decisive contribution to improving the quality and safety of healthcare in Germany in an evidence-based manner.

Details

OriginalspracheDeutsch
FachzeitschriftGesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany))
PublikationsstatusElektronische Veröffentlichung vor Drucklegung - 10 Okt. 2024
Peer-Review-StatusJa

Externe IDs

ORCID /0000-0001-6922-7148/work/173055564
ORCID /0000-0002-9888-8460/work/173055664
unpaywall 10.1055/a-2438-0670
Mendeley cfe23d44-53ca-3bbd-8533-dc3c3ffb2d93
Scopus 85214712745

Schlagworte

Schlagwörter

  • consent, health services research, infra structure, linkage, routine healthcare data, university medicine, consent, health services research, infra structure, linkage, routine healthcare data, university medicine