User-centered design approach to visualize PROMs for molecular tumor boards

Research output: Contribution to journalResearch articleContributedpeer-review

Contributors

Abstract

Integrating Patient-Reported Outcome Measures (PROMs) into Molecular Tumor Boards (MTBs) remains challenging due to the complexity of data visualization and integration into clinical workflows. This work, as part of the German PM4Onco project, aims to identify visualization requirements for PROMs and develop a prototype for PROMs integration in cBioPortal, facilitating broader application within oncology care. We employed a qualitative research approach, including developing personas for MTB stakeholders, conducting a literature-based requirements analysis, organizing a co-design workshop to create low-fidelity prototypes, and evaluating the highest-rated prototype variant through an online survey distributed to MTB physicians across Germany. Seven specialist groups were identified, with key needs including intuitive visualization, clear axis labeling, and longitudinal symptom tracking. The resulting mid-fidelity mockup incorporated PROMs data within cBioPortal's timeline view and a detailed PROMs tab, featuring trend indicators, line graphs, and customizable health displays. Usability evaluation by MTB members yielded a SUS score of 67, indicating an initial indicator of acceptable usability, with suggestions for improvements like threshold scores and deeper clinical data integration. While PROMs offer critical patient insights, they remain underused in MTBs. Our early-stage prototype demonstrates potential for addressing this gap, with future work focusing on implementation, broader testing, and international validation.

Details

Original languageEnglish
Article number273
Number of pages8
Journalnpj Precision Oncology
Volume9
Issue number1
Publication statusPublished - 5 Aug 2025
Peer-reviewedYes

External IDs

PubMedCentral PMC12325938
Scopus 105012582482
ORCID /0000-0003-2126-290X/work/190133962
ORCID /0000-0002-1887-4772/work/190134568
ORCID /0009-0005-7054-4059/work/190134617
ORCID /0000-0002-9888-8460/work/190134645

Keywords

Research priority areas of TU Dresden

DFG Classification of Subject Areas according to Review Boards

Subject groups, research areas, subject areas according to Destatis

Sustainable Development Goals

ASJC Scopus subject areas