Timely intervention, monitoring and education MATTERS in MS (TIME MATTERS in MS): Development of a globally applicable quality improvement tool

Research output: Contribution to journalResearch articleContributedpeer-review

Contributors

  • Jeremy Hobart - , University of Plymouth (Author)
  • Helmut Butzkueven - , Monash University (Author)
  • Jodi Haartsen - , Client Engagement and Wellbeing (Author)
  • Tjalf Ziemssen - , Department of Neurology, University Hospital Carl Gustav Carus Dresden (Author)
  • Thirusha Lane - , Clinical Research London (Author)
  • Gavin Giovannoni - , Queen Mary University of London (Author)

Abstract

BACKGROUND: Previously, consensus MS care standards were defined by MS specialist neurologists from 19 countries. We developed, piloted and refined an Excel-based quality improvement tool to enable MS services to benchmark against these standards. Here, we examine the refined tool.

OBJECTIVE: To determine the applicability of the quality improvement tool in different healthcare settings.

METHODS: MS centres across the globe were invited to pilot the quality improvement tool by coding the medical records of 36 adults with MS. We invited feedback on user friendliness, quality improvement tool usefulness and relevance of data collected.

RESULTS: Seventeen centres from 14 countries participated; 14 completed the post-service evaluation survey. Over 50% of responders rated the tool 'very easy' or 'easy' to use and 'very relevant' to their service. Almost 85% of responders (11/13) planned to introduce changes to their service, including improvements in documentation, communication, interactions with colleagues and referrals; 85% would use a future shorter version of the tool.

CONCLUSIONS: The quality improvement tool can enable MS centres globally to benchmark their services. Widespread uptake of a shorter tool may help MS centres to work towards achieving consensus standards for brain health-focused care. Incorporation into routine clinical practice would drive adoption.

Details

Original languageEnglish
Pages (from-to)20552173221124023
JournalMultiple sclerosis journal - experimental, translational and clinical
Volume8
Issue number3
Publication statusPublished - 2022
Peer-reviewedYes

External IDs

PubMedCentral PMC9465618
Scopus 85138742040

Keywords