Online decision aid for patients with prostate cancer evaluated by 11 290 patients and 91 urologists in Germany
Research output: Contribution to journal › Research article › Contributed › peer-review
Contributors
Abstract
OBJECTIVE: To evaluate the nationwide online decision aid 'Entscheidungshilfe Prostatakrebs' (established in 2016, >11.000 users and 60 new users/week) for patients with non-metastatic prostate cancer (PCa), from the perspective of patients and urologists.
PATIENTS AND METHODS: To provide personalised information, the tool collects most of the International Consortium for Health Outcomes Measurement standard set, personal preferences, psychological features, and a validated rating of the tool. To evaluate urologists' opinions, we developed a structured two-page questionnaire. All data were collected anonymously.
RESULTS: From June 2016 to December 2020, 11 290 patients used the PCa decision aid. Their median (interquartile range [IQR]) age was 67 (61-72) years. The median (IQR) time from initial diagnosis to using the tool was 4 (3-7) weeks. In all, 87.7% of users reported high satisfaction. In a multivariable model, predictors for considering observation were higher knowledge, using the decision aid alone, lower oncological risk, normal erectile function, and respective personal preferences. Of 194 urologists, 91 (47%) had implemented the decision aid in their clinical practice. The urologists' mean (SD) satisfaction score (1 'very good'; 6 'unsatisfactory') with it was 1.45 (0.55), and 92% recommended it. Half of the urologists reported time savings.
CONCLUSION: Patients and urologists report a very high level of acceptance and satisfaction with this online tool. It offers advantages in shared decision-making and time efficiency. The usage of the decision aid might improve the adoption of active surveillance and watchful waiting when indicated.
Details
| Original language | English |
|---|---|
| Pages (from-to) | 239-248 |
| Number of pages | 10 |
| Journal | BJU international |
| Volume | 134 |
| Issue number | 2 |
| Publication status | Published - Aug 2024 |
| Peer-reviewed | Yes |
External IDs
| Scopus | 85188628959 |
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Keywords
Sustainable Development Goals
Keywords
- Aged, Decision Support Techniques, Germany, Humans, Internet, Male, Middle Aged, Patient Satisfaction, Prostatic Neoplasms/therapy, Surveys and Questionnaires, Urologists/statistics & numerical data