Experiencing (Shared) Decision Making: Results from a Qualitative Study of People with Mental Illness and Their Family Members

Research output: Contribution to journalResearch articleContributedpeer-review

Contributors

  • Katja Schladitz - , Leipzig University (Author)
  • Elena C. Weitzel - , Leipzig University (Author)
  • Margrit Löbner - , Leipzig University (Author)
  • Bettina Soltmann - , Department of Psychiatry and Psychotherapy (Author)
  • Frank Jessen - , University of Cologne (Author)
  • Andrea Pfennig - , Department of Psychiatry and Psychotherapy (Author)
  • Steffi G. Riedel-Heller - , Leipzig University (Author)
  • Uta Gühne - , Leipzig University (Author)

Abstract

(1) Background: There is a fundamental shift in healthcare toward shared decision making (SDM). This study explores SDM from the perspective of individuals affected by mental illness and their family members and investigates factors which promote and hinder the process. (2) Methods: We conducted N = 15 telephone interviews (n = 4 adults affected by mental illness, n = 5 family members, n = 6 both applicable, the majority reporting experiences with affective and anxiety disorders). Data were recorded, transcribed, and analyzed according to procedures established by Mayring. (3) Results: Individuals affected by mental illness and their family members have a strong desire to be involved in treatment decisions and to participate in finding a diagnosis. Often these stakeholders are denied the opportunity to participate; sometimes enabling behaviors impede participation. The stigmatization of mental illnesses is a major barrier. There are also structural barriers to SDM within the healthcare system. Peer support, self-help associations, and psychosocial counseling services are important to empowering individuals and promoting SDM. (4) Conclusions: SDM has the potential to improve the quality of mental healthcare. Barriers can be mitigated and new approaches for interventions in the psychiatric sector have been identified. This study has also shown the importance of understanding SDM as a process that should begin at the diagnostic phase.

Details

Original languageEnglish
Article number2237
JournalHealthcare (Switzerland)
Volume11
Issue number16
Publication statusPublished - Aug 2023
Peer-reviewedYes

External IDs

ORCID /0000-0002-3415-5583/work/150329741

Keywords

Sustainable Development Goals

Keywords

  • empowerment, mental health, mental illness, shared decision making, trialogical approach