Consensus quality indicators for monitoring multiple sclerosis

Research output: Contribution to journalReview articleContributedpeer-review



Multiple sclerosis (MS) as a chronic, degenerative autoimmune disease of the central nervous system has a longitudinal and heterogeneous course with increasing treatment options and risk profiles requiring constant monitoring of a growing number of parameters. Despite treatment guidelines, there is a lack of strategic and individualised monitoring pathways, including respective quality indicators (QIs). To address this, we systematically developed transparent, traceable, and measurable QIs for MS monitoring. Through literature review, expert discussions, and consensus-building, existing QIs were identified and refined. In a two-stage online Delphi process involving MS specialists (on average 53 years old and with 25 years of professional experience), the QIs were evaluated for content, clarity, and intelligibility, resulting in a set of 24 QIs and checklists to assess the quality of care. The final QIs provide a structured approach to document, monitor, and enhance the quality of care for people with MS across their treatment journey.


Original languageEnglish
Article number100891
JournalThe Lancet Regional Health - Europe
Publication statusPublished - 1 May 2024

External IDs

Scopus 85189013013
ORCID /0000-0003-0097-8589/work/157318851
ORCID /0000-0002-6513-9017/work/157319458
PubMed 38585674