Standard Health Consent: Ein partizipativer Einwilligungsmanagment-Ansatz für die Nutzung von Gesundheitsdaten aus Apps und Wearables
Publikation: Beitrag in Buch/Konferenzbericht/Sammelband/Gutachten › Beitrag in Konferenzband › Eingeladen › Begutachtung
Beitragende
Abstract
Health apps and wearables are becoming increasingly popular. Through sensor measurements and manual entries, people can easily record a variety of health-related parameters in their daily lives. These data contain valuable information not only for personal healthcare but also for secondary uses, such as medical research. The potential has been recognized, and initiatives for the shared use of health data, like the European Health Data Space, aim to include data from apps and wearables in addition to traditional clinical health data. However, the current draft leaves open how citizens can exercise control over the sharing of their data. We describe a new, standardized approach for obtaining and managing consent for sharing health data from apps and wearables: the Standard Health Consent. The digital Standard Health Consent platform could give citizens control over the use of their health data and contribute to the development of a fair and trustworthy health data ecosystem. In an initial pilot survey with physicians, the opinions of this professional group regarding health data digitally collected by patients themselves, as well as digital consent management, are recorded.
Details
Originalsprache | Deutsch |
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Titel | Data Sharing |
Redakteure/-innen | Michael Friedewald, Alexander Roßnagel, Christian Ludwig Geminn, Murat Karaboga, Stephan Schindler |
Erscheinungsort | Baden-Baden |
Herausgeber (Verlag) | Nomos Verlagsgesellschaft mbH & Co. KG |
Kapitel | 4 |
Seiten | 265-286 |
Seitenumfang | 22 |
Auflage | 1 |
ISBN (elektronisch) | 978-3-7489-4017-3 |
ISBN (Print) | 978-3-7560-1266-4 |
Publikationsstatus | Veröffentlicht - 16 Okt. 2024 |
Peer-Review-Status | Ja |
Publikationsreihe
Reihe | Privatheit und Selbstbestimmung in der digitalen Welt = Privacy and self-determination in the digital world |
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Band | 4 |
ISSN | 2940-0333 |
Externe IDs
ORCID | /0000-0002-3415-5583/work/170107884 |
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ORCID | /0000-0002-6808-2968/work/170108038 |
ORCID | /0000-0002-1997-1689/work/170108088 |