Bridging the gap: A quality improvement project to implement psychosocial care standards into clinical practice in pediatric oncology

Publikation: Beitrag in FachzeitschriftForschungsartikelBeigetragenBegutachtung

Beitragende

  • Liesa J. Weiler-Wichtl - , Medizinische Universität Wien (Autor:in)
  • Verena Fohn-Erhold - , Medizinische Universität Wien (Autor:in)
  • Carina Schneider - , Medizinische Universität Wien, Childhood Cancer International – Europe (CCI-E) (Autor:in)
  • Agathe Schwarzinger - , Österreichische Kinder-Krebs-Hilfe (Autor:in)
  • Kerstin Krottendorfer - , Medizinische Universität Wien (Autor:in)
  • Thomas Pletschko - , Medizinische Universität Wien (Autor:in)
  • Verena Rosenmayr - , Universitätsklinikum AKH Wien (Autor:in)
  • Johannes Gojo - , Medizinische Universität Wien (Autor:in)
  • Andreas Peyrl - , Medizinische Universität Wien (Autor:in)
  • Karin Dieckmann - , Medizinische Universität Wien (Autor:in)
  • Alina Stefanie Kollmann - , Medizinische Universität Wien, Kepler Universitätsklinikum (Autor:in)
  • Rita Hansl - , Medizinische Universität Wien (Autor:in)
  • Irene Slavc - , Medizinische Universität Wien (Autor:in)
  • Jonathan Fries - , Medizinische Universität Wien, Universität Wien (Autor:in)
  • Maximilian Hopfgartner - , Medizinische Universität Wien (Autor:in)
  • Ulrike Leiss - , Medizinische Universität Wien (Autor:in)

Abstract

Background: Psychosocial guidelines and standards systematically describe stressors and resources in particularly challenging situations and hence serve as a basis for interventions to achieve defined psychosocial goals. Despite fundamental principles and guidelines for psychosocial methods, the quality of provided care varies considerably depending on setting, provision, and profession. The purpose of the present protocol is to illustrate the development and evaluation of the standardized psychological intervention My Logbook, a practical guide accompanying children through all stages of treatment by directly translating current quality standards of psychosocial care into practice. 

Methods: In an evidence-based set-up, using face-to-face discussions and telephone conferences, a multi-professional team of local experts decide on critical disease-related issues, structure, content (information and intervention elements) and design of the quality improvement tool. Via delphi surveys an extended expert team is asked to rate the content, method, and design of all booklets which is concluded by a final agreement by the specialist group for quality assurance of the psychosocial working group in the Society for Pediatric Oncology (PSAPOH). The developed tools are piloted in an international multicenter study to evaluate the patient-reported outcome and feasibility and to integrate practical views of patients, as well as psychosocial and interdisciplinary professionals into the further development of the My Logbook. 

Discussion: The iterative development of the My Logbook including local and international experts as well as the patient and practical perspective allow for the design of a process-oriented, consensus - and evidence-based tool directly translating the S3-Guideline into clinical practice. Feasibility and applicability are fostered through an iterative process of constant evaluation and adaptation of the tool by international experts and through the clinical experience gathered in the multi-centered pilot study. Furthermore, the systematic evaluation of the tool by patients, psychosocial, and interdisciplinary professionals enables the identification of persisting gaps between evidence-based standards and clinical practice, discrepancies between the various stakeholders' perspectives as well as regional differences in feasibility, thereby directly linking practice and research. The preliminary results emphasize that psychological support can be standardized, enabling an evaluation and optimization of psychosocial care which future studies need to assess in multicenter clinical randomized controlled trials.

Details

OriginalspracheEnglisch
Seiten (von - bis)350-359
Seitenumfang10
FachzeitschriftKlinische Padiatrie
Jahrgang235
Ausgabenummer6
PublikationsstatusVeröffentlicht - Nov. 2023
Peer-Review-StatusJa
Extern publiziertJa

Externe IDs

PubMed 37494589
PubMedCentral PMC10635755

Schlagworte

Schlagwörter

  • evidence - and consensus-based guidelines, implementation research, patient-centered care, pediatric oncology, quality improvement, therapy optimization